Tobias' Recovery

Tobias' Journey:  Exploring Mirror Therapy for Brain Bleed Recovery Hey there, dear friends and family! Today, I want to assure you that Tobias, whose story is a testament to the power of determination, creativity, and innovation in the world of rehabilitation, when a family works together and puts their trust in God or the universe, or whatever you like to call the power of love and hope. Tobias experienced two years ago a life-altering brain bleed on the right side of his frontal lobe with some bleeding in the lower layers, left of his brain. The severity of his bleed is due to a lack of intensive care beds in the hospital in 2021. This unexpected event left him with some challenges, but what he's doing now is truly inspiring. Life in the now, not in the past. The past serves as a base for now.  Tobias' Brave Battle Two years ago, Tobias' life took an unexpected turn when he suffered a brain bleed on the right side of his frontal lobe. This challenging situation left ...

Die Faszination des Gehirns von Tobias: Ein komplexes Mysterium Das menschliche Gehirn – ein Organ von beeindruckender Komplexität. Seine Funktionsweise zu begreifen bleibt eine Herausforderung, und das ist auch nicht verwunderlich angesichts seiner unzähligen Verknüpfungen und Schaltkreise. Interessanterweise beschäftigen sich Wissenschaftler erst seit vergleichsweise kurzer Zeit intensiv mit diesem faszinierenden Organ. Diese Erkenntnis allein verleiht Hoffnung und zeigt, dass es in Ordnung ist, verschiedene Herangehensweisen auszuprobieren, um beschädigte Hirnareale von gesünderen Regionen übernehmen zu lassen. Als Mutter eines solchen Kriegers sehe ich darin nicht nur Möglichkeiten, sondern auch einen Funken Hoffnung. Kampf um die Rumpfmuskulatur: Ein Weg zu Stärke Die Stärkung der Rumpfmuskulatur – eine Aufgabe, die sich als anspruchsvoll erweist. Mein Sohn, Tobias, hat eine halbseitige teilweise Lähmung. Zwar hat er inzwischen gelernt, einige Muskeln zu kontrollieren, doch der Au...

  Dear Tobias, I hope this letter finds you well. Your mom told me a bit about your life, how much it has changed due to your unfortunate brain bleed, and how much people around you have changed for various reasons.  I wanted to talk to you about something important, particularly regarding how society perceives interactions between healthy individuals and those who have recently acquired a disability. I know that this might be a challenging time for you, and I want to offer my support and understanding as you navigate this new chapter in your life. In our society, people's reactions and feelings toward those with disabilities can vary significantly based on their personality, experiences, and level of empathy. Some individuals might respond with kindness, understanding, and genuine empathy, treating you with respect and inclusion. They may try to understand your challenges and emotions better by putting themselves in your shoes. On the other hand, some people may feel uncertai...

  Tobias is eager to talk, a strong desire to chat evident in him. Can you imagine having thoughts and feelings, yet struggling to make others truly understand you? Since I've dedicated myself to being there for Tobias, I have an abundance of time to listen.  I keep asking him over and over until I can figure out what he's trying to say. It's just too bad that most folks don't have that kind of time, patience, or know-how to handle these situations.  Honestly, it's tougher on me than on Tobias, I think. Sometimes in those awkward moments, my ego pops up, and I'm like, "Does he think Tobias is dumb or what?" I guess it's just human nature to have those thoughts, you know? I gotta share some awesome moments with Tobias!  The other day, Tyler was a total champ and took care of him and I got a break. He brought Tobias downstairs and into the kitchen. Tyler left for a bit, and guess what? Tobias, being the clever dude he is, managed to move his wheelcha...

 Every day we strive to teach Tobias how to get the spoon or fork into his mouth.  It has to be explained step by step. The executive task of eating, the command,  and the automatic execution of the functions "how do I use my tool "has been deleted just like a faulty computer program.  It appears extremely difficult for our brain to send signals/commands to all necessary body parts to enable us to execute a task. Why are we surprised that people with brain injuries are tired a lot? After a long day of work or school,  we understand why our energy level appears relatively low or simply exhausted.  Our brain uses lots of energy to learn! As parents, it requires so much understanding, perseverance, and strength. For the past 14 months, after leaving the hospital, we've been working and praying for the freedom Tobias needs back in his life. He LOVE'S eating :) My heart desired to teach him how to eat again! Giving Tobias this freedom back means so much to me. A...

"Tobias and his journey back into life (2)" Today is a day of going deeper into the things which bother me. I write in my journal and some of I will share here in our blog. What makes me sad at times? Tobias and his inability to communicate with us! It is difficult to say, „das wird schon“, how do we know? Another feeling I carry around is, that I feel left alone from my heavenly father. I feel very blessed with material security, endless grateful for this. I mean, that I am missing the mental feel of safety currently.  The deep feeling of content, what makes me realize, that God is always close by. I might not feel it because of the restless world we live in. The wars, the crazy people who do crazy things to kill others, the politicians who are ruled deep inside by a much darker site. Of course, not all leaders, but it feels like, that even the good people hiding behind a wall instead standing up for something much better. The light in the world is dim right now. I assume th...

Speech Therapy & 🙌 A Sunny Tomorrow The way people look at me when I tell them that Tobias will get back to his life and finish his education is priceless. Why do we often let fears control our lives? We are limiting ourselves. One thing we were constantly bothered about: Tobias always said, " I am the best," and let us all know how great he was. We got irritated and wondered why he needed to talk like this. Tobias always had a great sense of humor, which I only sometimes got; moreover, it was the Tobias we love. He has a pure heart, a rough personality, and lots of humor.