Eating but HOW??? (Essen ... aber wie???)







 Every day we strive to teach Tobias how to get the spoon or fork into his mouth.  It has to be explained step by step. The executive task of eating, the command,  and the automatic execution of the functions "how do I use my tool "has been deleted just like a faulty computer program. 



It appears extremely difficult for our brain to send signals/commands to all necessary body parts to enable us to execute a task. Why are we surprised that people with brain injuries are tired a lot? After a long day of work or school,  we understand why our energy level appears relatively low or simply exhausted. 

Our brain uses lots of energy to learn! As parents, it requires so much understanding, perseverance, and strength. For the past 14 months, after leaving the hospital, we've been working and praying for the freedom Tobias needs back in his life. He LOVE'S eating :) My heart desired to teach him how to eat again! Giving Tobias this freedom back means so much to me. Although we're very close, it still seems far away. His brain bleed requires a lot of commitment and repetition from everyone and brings frustration and sadness while giving joy, gratitude, and humility in return. I am grateful that God gave us this opportunity to learn and that Tobias' life can continue. 

I would also like to leave something else with you. I speak from my heart, emphasizing that we do not believe anyone, including our Father in Heaven,  was responsible for this severe brain hemorrhage. Life consists of joy and sorrow, and it is important to recognize so we can accept both with gratitude.

God bless you.

Katja und Tyler 

Deutsch:

Jeden Tag bemühen wir uns, dem neuen Tobias beizubringen, wie er den Löffel oder die Gabel in den Mund bekommt. Es muss Schritt für Schritt erklärt werden. Die exekutiven Ausführungen, der Befehl, die automatische Ausführung der Funktionen „wie benutze ich mein Werkzeug, “ wie ausgewischt, mit einem defekten Computerprogramm zu vergleichen. 

Ich halte diesen Neuerwerb, diese Funktion neu zu vermitteln, für äußerst schwierig. Es erfordert so viel Verständnis, Ausdauer und Kraft. Seit 12 Monaten setzen wir uns dafür ein, Tobias seine Freiheit wieder zu geben, obwohl wir sehr nahe dran sind, erscheint es aber immer noch weit entfernt. 

Seine Gehirnblutung erfordert von jedem viel Engagement, bringt Frustration und Traurigkeit, während sie im Kehrzug, Freude, Dankbarkeit und Demut schenkt. Ich bin dankbar, dass Gott uns diese Chance gab, zu lernen und Tobias’ Leben auf dieser Erde fortgesetzt werden kann. Ich möchte auch von meinem Herzen sprechen, ausdrücklich betonen, dass wir nicht glauben, dass jemand, einschließlich unserem Vater im Himmel, Tobias diese schwere Gehirnblutung in den Schoss lag. 

Das Leben besteht aus Freude und Leid, und es ist wichtig zu erkennen, damit wir beides mit Dankbarkeit annehmen können.

God bless you!

Comments

  1. AnonymousJuly 4, 2023 at 11:08 AM

    So good Katja. Thanks for inspiring me.

    ReplyDelete

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