Day 94 (Nov 24)


Tobias was tired today.  Each successive therapy reported that he was more and more tired.  He was still strong enough at lunch time to eat well, but he continued to tire and by dinner time he couldn't keep his eyes open.  To make eating worse, I ordered noodles in marinara sauce for Tobias' dinner and forgot to order jello or anything else that would be easy to swallow.  The noodles were difficult for Tobias to chew and swallow and it made dinner tiring and short.  Tobias fell asleep and I couldn't wake him up... until I put Psych on the TV.  Tobias miraculously opened both eyes and watched for ten minutes at a time before drifting off for short naps.  I won't be ordering the noodles again.

The doctor and the case manager both spoke with contacts in Germany.  The bottom line is that Tobias' target return date is December 4th.  The neurosurgeon will perform the angiogram at the beginning of next week and the air ambulance will schedule the return trip for the following Saturday.  This plan is written in pencil because it may change, but at least it's a plan.

The rehab doctor has been making gradual changes to Tobias' medications.  He has reduced the propanolol, which is a beta blocker used to keep Tobias' heart rate low.  Tobias' heart rate ranged from 70 to the high 90s today, but at 6:30 it spiked to 125.  His heart rate has come back down to 100, so maybe the heart rate spike was due to discomfort, but it looks like Tobias may not be out of the woods yet. 

Hope over fear.

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Thanks for leaving a comment. We appreciate and enjoy your well wish and the thoughts you are sharing with us. Love, The Dunn's

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