Tobias' Recovery

“Save Me from This Therapist” When Therapy Hurts – and Still Carries Hope This morning, Tobias had speech therapy and occupational therapy as an interdisciplinary session. That means both therapists work together so Tobias can learn to speak louder while moving. During the transfer, this is anything but easy. Tobias still lacks full core strength. I watch the therapists closely. The occupational therapist works very deeply into the muscles — and it hurts a lot. Tobias complains loudly and calls out to me: “Mother, save me from this woman!” I start wondering whether the overstimulation over the weekend and on Monday might be connected to his pain center — memories from 2021 and 2022 resurface. I want to step in immediately, but I hesitate. Stretching and mobilizing like this must hurt terribly. He cries and complains — and that breaks a mother’s heart. For a moment, I ask myself whether it is even acceptable to cause this much pain in patients like Tobias. I am not the expert, so at fir...

  A Winter of Therapy, Awareness, and Small Victories It’s been a little quiet here — even though this page was meant to be active. A space for our peers, for those directly affected, and for anyone who wants to learn more about the journeys of others and the courage it takes to face them. In the second half of 2025, Tobias made progress that brought us joy — but that progress also revealed some lingering challenges more clearly. Let me explain it this way: imagine your neck hurts, your back makes daily life harder. Then the physiotherapist gets to work, and you begin learning how to strengthen your core muscles. Suddenly, things start improving. Your posture, your stability, your pain levels — all better. Then, out of nowhere, the tennis elbow flares up again. You start to feel it. Why now? It’s a matter of perception. The neck pain had been louder — more dominant. The brain gave it priority. Now that you're addressing the neck and responding to the body's signals, the brain s...