Day 50 (Oct 14)


We received a call from the hospital last night to inform us that the neurosurgeon will complete the cranioplasty on Tobias a week from tomorrow and not today as was the plan when we left the hospital.  News doesn't always travel quickly in the hospital and apparently the decision had been made earlier in the day to postpone the surgery.  The neurosurgeon is leaving for a conference on Saturday and he didn't want to perform the cranioplasty on Thursday (today) and leave before he was sure there would be no complications.  The risk of infection and seizures are low, but he didn't want to hand off to another team when waiting a week would allow him to personally oversee any setbacks.

Tobias and Katja brave the elements



Today has been another calm day for Tobias.  His heartrate has been low much of the day and only pushed into storming territory in the late afternoon, which seems to be a pattern for Tobias.  He is alert and calm in the morning and slightly more sleepy in the afternoon.  Toward the end of the afternoon he remains outwardly calm, but his heart rate creeps up over 100 and then sometimes will cross the 110 barrier and he'll show signs of storming.  His storming over the past few days has been a much weaker version than in the ICU or when he was on the brain stimulant, so our present situation is a relief from the still painful memory of what storming can be like.  It's interesting how we can be so grateful that he is only mildly storming because we know it could be much worse.  I mentioned before that happiness and heartache is relative.  Shouldn't we feel heartache that he is unconscious in a hospital bed with a pulse that is 1.8x his healthy resting heart rate and a heightened respiratory rate?  Nope.  We're grateful and relieved.  Being human is weird.

Hope over fear.

Comments

  1. UnknownOctober 15, 2021 at 6:26 AM

    What a great photo. I wish I were there to help push him around in the snow! God bless.

    ReplyDelete
  2. WendyOctober 17, 2021 at 10:55 AM

    Heartbreaking photo of a Mother's love in motion. Love, hugs, and prayers💕

    ReplyDelete

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