Posts

Showing posts from May, 2025

Tobias' month in Lindlar 2025 - intensiv speech therapy

Image
It was quite an experience  taking Tobias to Lindlar Tyler took the train with Tobias to Cologne, while I drove the car with all our luggage, everything needed for Tobias’s care, some rehab equipment, and more. The car was packed — no space left for Tyler and Tobias. I also felt it was important to bring both wheelchairs, since Lindlar is nestled in a beautiful valley surrounded by fields and woods, but with many steep hills, even in the tiny village. My back isn’t in great shape, and I didn’t want to risk anything. Pushing a wheelchair uphill confirmed that it was the right decision to bring both. Tyler and I were nervous about the trip. How would Tobias do? Would he be in pain? We're still scared and somewhat traumatized from the first two years, when Tobias often had storming episodes and severe pain. He's shown us that his body has become more stable and stronger — but we still carry hesitation. And he did great. So did Tyler. It took me almost ten hours by car due t...

“Sitting Still Isn’t Giving Up” What is to much and what is not enough?

Image
  TobiasComeback Blog Entry: “Sitting Still Isn’t Giving Up” May 12, 2025 Today, I watched Tobias sit in his wheelchair, parked just a few feet from where he wanted to go. He sat there, quiet, still, and focused—his right leg poised for a move that didn’t come. I didn’t rush in. I didn’t rescue. I just watched it. And waited. How long is too long to wait? That question lives in the quiet spaces of our daily lives. It’s not just about time; it’s about trust. Trust in the process. Trust in the effort, even when it may not appear to be effortful. Trust in the stillness that might seem like stuckness but could actually be building something unseen. We’re teaching Tobias to move his wheelchair using his right leg on the floor—just a scoot, a push, a glide. It sounds simple. But for someone whose brain was once bathed in blood from a rupture he didn’t ask for, it’s a mountain. And yet, day after day, we practice. Occasionally he can do it, but sometimes he freezes. And that’s whe...